Most people think that HIPAA means that their medical records are kept private. But what if I told you that HIPAA doesn’t protect your privacy at all?
This is our first video in a series about medical privacy, specifically looking at legislation that stripped individuals of the right to consent to medical data sharing.
We focus on what HIPAA actually is, how it came to allow our data to be shared without us even knowing, how we’ve been tricked into thinking we have privacy, and steps we can take to reclaim control of our medical data.
It’s a mess and another reason to eliminate middle men. I’m okay with data being collected for WHO, for purposes of tracking morbidity and mortality, and modality for treatment, but I’d be interested in digging into how those rules are written, too.